Awareness benefit dinner held to help find cure for Huntington’s disease

Hampden County

A Springfield family is raising money to help find a cure for Huntington’s disease. 

The Cusson family has been holding an awareness benefit dinner at the Marconi Club in Springfield for the past three years. 

It’s to raise money for Christopher Cusson who suffers from Huntington’s disease. It’s a brain disorder that causes uncontrolled movements.

There is no cure as of right now.

Christopher is 42 years old and was diagnosed when he was 28. 

All proceeds from the event will go to the Huntington’s Disease Society on June 23rd during the second annual Hope Walk at Springfield College. 

Christopher’s sister told 22News they hold this benefit to teach people about the disease. 

“Unfortunately, he has a terminal form of Huntington’s disease but that doesn’t stop his spirits or anything like that,” said Jessica Cusson. “His wish is as a family, we just pull together and spread awareness, because a lot of us don’t know about it.”

The benefit included at 50/50 raffle, and a cash machine. 

Last year, the family raised more than $5,000

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