Northampton, Mass. (WWLP) – Medical professionals, patients, residents and advocates gathered in front of Northampton City Hall to raise awareness for Myalgic Encephalomyelitis, also known as “Chronic Fatigue Syndrome.” Myalgic Encephalomyelitis, commonly referred to as ME, is a disease that involves inflammation of the brain and the spinal column. It impacts both the immune system and the nervous system. 25% of patients are homebound, and 75% can’t work. As many as two and half million Americans have ME.
Heather Smith, a patient from Keene, NH told 22News “We’re trying to make awareness that we need research, we need funding, we need clinical trials to try and find something that works to help fight this disease.”
Today’s rally was part of a national and worldwide campaign called “Millions Missing”, to focus more awareness on people struggling with ME. Currently there is no training for ME at medical schools, and there is no cure at this time.
“Millions Missing” events took place in 25 cities around the world, including 12 in the United States.
